Amy and John are a young couple with a five year old
daughter Abby. Amy also has a nineteen year old son, Brian, from a previous
relationship. They had planned on having a large family. Abby was diagnosed
with leukemia when she was two years old. She has had three surgeries and is
currently on the transplant list for a bone marrow transplant as well as a new
kidney. A bone marrow transplant would most likely put her in remission enough
to receive a new kidney. Abby is on dialysis six days a week and spends most of
her time in the hospital. Abby has never been to preschool and hardly plays
with children her own age, except for in the hospital daycare, when she is well
enough to go there.
Neither Amy
nor John are blood matches for Abby. Brian left home when he turned eighteen,
has not been tested as a possible donor, and has not made contact with the
family for four months. No other close relatives are match for Abby.
Prior to
Abby getting sick, Amy and John discussed having another child. Now however, Amy
and John approach Dr. Johnson, a fertility specialist, to help them have another
child. They want to select various aspects of the fetus. Specifically, they
want to select for a child that would have the same blood type as Abby in order
to use the cord blood from the birth as a marrow transplant for Abby. They also
hope that the new baby will be able to donate its kidney to Abby at a later
date. During her initial meeting with the couple, Dr. Johnson notices that John
does not talk much and when asked direct questions he tends to direct them
towards Amy or answers with one word answers.
This concerns Dr. Johnson and she
decides to sit down with Amy and John separately. When she talks with Amy, she
can tell that this is their last option to save Abby’s life and Amy is clinging
to the only hope she has left. Amy is well within child bearing years and
having another child would pose no immediate health risks to her or the
potential baby. Amy wants to begin this process as soon as possible and wonders
exactly when they can begin. However, during her discussion with John, Dr. Johnson
has to ask him a lot of questions before he finally blurts out that he is not
alright with designing a child to be used to save Abby. He was raised a staunch
Catholic and he believes that every life is sacred. He is concerned about the
eggs that will be lost in the process and the potential lives they could have
been as well as the idea that their new child will be used as a commodity. He
states that he knows he and Amy will love the child regardless of the outcome
but he is concerned about Amy’s motivations behind having this child. He is too
nervous, however, to talk with Amy about his concerns and problems with the
creation of their next child because he fears she will leave him if she thinks
he is not on board. He is also afraid of the guilt he will feel if he does not
do everything possible to save his little girl. However, he swears that he
cannot tell his wife about his feelings and asks Dr. Robinson to keep them
confidential. Dr. Robinson calls the couple into her office the next day to
discuss the options available to the family. As Dr. Robinson, do you offer to
help them create a baby with the desired blood type?
-Written by Kate Sulkowski
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